Multiple System Atrophy is a very complex disease and now I have many problems. Looking back on it now, when I was first diagnosed I entered a period where I was in deep shock and was grieving so many losses. I saw a psychologist from the onset of my illness, but still the magnitude of this disease and its problems was making it too hard to cope.
Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement. It is not known how MSA arises, and no environmental or genetic contributors have been identified. Several mechanisms are believed to contribute to the disease process.
The leaders of the consortium’s six charities have entered into a cooperative agreement to work as one united front to support patients, educate health professionals, raise public awareness and fund promising research.
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Defeat MSA Alliance Board of Directors and affiliated charities in the MSA United Consortium are pleased to announce the second Annual All-Community MSA Conference to be held 24 September – 2 October, 2021. This year’s conference will include several exciting educational presentations, live question and answer sessions and expert panels. The conference is FREE to patients, caregivers and advocates. A detailed agenda to be announced soon!
Defeat MSA Alliance (USA), Defeat MSA/Vaincre AMS Canada and affiliated organizations are members of “MSA United International,” a global consortium dedicated to the defeat of Multiple System Atrophy.
MSA United Global Partnerships
Today, the Board of Directors of Defeat MSA Alliance (USA), Defeat MSA/Vaincre AMS Canada, and Defeat MSA Australia and New Zealand, three of the six partnering members of the MSA United Consortium, have approved several grants to fund promising new research. The Consortium, which also includes two other charities, La Asociación Española Síndrome Shy Drager – Atrofia Multisistémica (Spain) and Combattiamo l’Atrofia Multisistemica (Italy), issued a global Request for Proposals (RFP) in July of 2021, inviting grant applications for new and novel studies in pathogenesis, biomarkers, and pre-clinical and clinical research areas. The funding of these seed grants was based on recommendations of the Consortium’s international Research Advisory Board.
Third Annual Virtual MSA All-Community Conference