MULTIPLE SYSTEM ATROPHY UNITED
UNITED, WE CAN AND WILL DEFEAT MSA FOREVER!
- RESEARCH
- EDUCATION
- SUPPORT
- ADVOCACY




What is
Multiple System Atrophy?
MSA is a rare, fast and fatal brain disease. MSA impairs the systems that regulate blood pressure, heart rate and the bladder – many of the basic bodily functions that people take for granted every day. People with MSA suffer from dangerously low blood pressure, speech and swallowing difficulties, sleep disturbances, breathing problems, rigidity and tremors. The life expectancy is typically 5 to 10 years. Patients with advanced MSA often become bed-bound, unable to speak and immobile. At present, there is no cure for MSA, no genetic tests to detect it, no therapy to slow it and very few treatments to manage its debilitating effects.
MULTIPLE SYSTEM ATROPHY UNITED INTERNATIONAL

Defeat MSA Alliance (USA)
Defeat MSA Alliance is a US based 501(c)(3) charity that aspires to balance patient support, medical education, public awareness, promising research and community advocacy.

Defeat Multiple System Atrophy – Vaincre L’Atrophie Multisystématisée (Canada)
Defeat MSA Canada is a Canadian registered organization that aspires to to balance patient support, medical education, public awareness, promising research and community advocacy.

Defeat MSA Australia (Defeat MSA Down Under)
Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia. It aspires to balance patient support, medical education, public awareness, promising research and community advocacy.

Combattiamo l’Atrofia Multisistemica (MSA-Italia)
La prima organizzazione Italiana a sostegno dei malati e dei caregivers che convivono con l’Atrofia Multisistemica. Il nostro scopo è fornire supporto ed informazioni a coloro che si trovano ad affrontare questa poco conosciuta patologia neurodegenerativa.
The first Italian organization to support patients and their caregivers Multiple System Atrophy.

Defeat MSA Awareness Shoe
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The MSA Awareness Shoe is a tool for spreading awareness, increasing support for patients and their caregivers and fighting MSA by raising vital research dollars. The Shoe’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

Atrofia Multisistémica (ASYD)
Atrofia Multisistémica es una asociación que atiende a afectados por AMS y sus familiares- Entre nuestros objetivos principales pretendemos dar visibilidad a la enfermedad, promover la investigación y aportar los recursos disponibles para la mejora de la calidad de vida de estos pacientes.
The Association for Atrofia Multisistémica cares for those affected by Multiple System Atrophy (AMS/MSA) and their families. Our intention is to give visibility, promote research and provide available resources to improve the quality of life for AMS/MSA patients.

Landsforeningen Multipel System Atrofi
Landsforeningen Multipel System Atrofi blev stiftet i 2004, og har fra starten med en bestyrelse af frivillige arbejdet for oplysning om og forskning i MSA i Danmark.
Bestyrelsen satte sig fra starten det mål, at der skulle findes god oplysning om denne relativt sjældne neurologiske sygdom på dansk. Og det betød, at vi lagde ud med at skaffe midler til og oprette en hjemmeside.
Og igennem de følgende år udgav vi hvert år en pjece om nogle af de mange forskellige sider af sygdommen. Vi startede med en Kort Introduktion: Multipel betyder mange, System betyder strukturer i nervesystemet og Atrofi betyder svind.
Og så over de følgende år udkom: Information til Patienter og Pårørende, Information om Blodtryksproblemer, Information om Synke- og Taleproblemer, Information om Vandladningsproblemer, Information om Forstoppelse, Information om Søvnforstyrrelser, Information til brug ved Hospitalsindlæggelse, Den Skjulte Patient, Information til de pårørende.
Alle pjecer sendes til vore medlemmer ved indmeldelsen i foreningen.
Det viste sig hurtigt for bestyrelsen, at også forskningen i MSA er utrolig vigtig, og det ville være meget ønskeligt, om Danmark kunne komme med blandt de lande, der forsker i sygdommen. Det er vi i dag.
Takket være fondsstøtte til foreningen har der kunnet oprettes en såkaldt biobank på Bispebjerg Hospital, hvor der nu opbevares vævsprøver af forskellig slags fra MSA patienter, også de hjerner som mange MSA patienter vælger at donere til forskningen efter dødsfald. Det betyder, at der i Danmark er oparbejdet et værdifuldt center for forskning i MSA.
MSA-foreningen har ligeledes støttet flere ph.d. projekter af danske forskere.
Vi har sammen med Parkinsonforeningen kunnet støtte et professorat i neurologi med særlig fokus på neurostereologi på Københavns Universitet.
MSA UNITED
PATIENT
ADVOCACY COUNCIL
The mission of the MSA Patient Advocacy Council is to facilitate communication between stakeholders in the MSA community, creating a global platform for discussion, consensus building, and a vehicle for sharing experiences related to living with MSA.

Charlene McCabe Allemon
Michigan, USA
Joshua Lee Calvert
New South Wales, Australia
Rev’d Stephen Donald
Gisborne, New Zealand
Grace Dunne
New York, USA
Miguel Ángel del Pino Esteban
Member, Patient Council (Asociacion Shy-Drager - Spain)
Barbara Flanagan
Tennessee, USA
Kelly Murphy
Ontario, Canada
Michael Smith
Texas, USA
Daniel Tenev
Milan, Italy
Marta Behrendt
Marburg, Germany
Veronica Whitelock
Johannesburg, South Africa
Valerie Garneau
Quebec, CanadaFiles and Resources
Find a Doctor
Find a Support Group
- in Spain
- in Italy
- in USA
- in Canada
- in Australia
- in New Zealand
- Online Support Groups
About Our Consortium
- PRESS RELEASE (ENGLISH)
- PRESS RELEASE (ITALIAN)
- PRESS RELEASE (SPANISH)
- PRESS RELEASE (FRENCH)
- PRESS RELEASE (PORTUGUESE)
Volunteer to help
- English
- French
- Spanish
- Italian
MSA United Consortium Representatives Council
Rosemary Arbuthnot (Northern Ireland)
Ann Bagchi (United States)
Philip Fortier (United States)
Beth Foster (Canada)
Olivia Romano (Australia)
Miguel Ángel del Pino Esteban (Spain)
Sergei Povaliaev (Russia)
Monica Remartini (Italy)
Jacqui Simpson (New Zealand)

GLOBAL SCIENCE AND MEDICAL RESEARCH ADVISORS
Affiliated Charities

Gregory W. Auner, PhD
Scientific Research Advisory Board (Defeat MSA Alliance - USA)
Pratik D. Bhattacharya, MD, MPH
Scientific and Medical Research Advisory Boards (MSA United - India/United States)
Alessio Di Fonzo, MD PhD
Milan, Italy (MSA United - Combattiamo MSA Italia)
Ziv Gan-Or, MD, PhD
Scientific Research Advisory Board (MSA United - Israel/Canada)
Edwin B. George II, MD, PhD
Chair, Medical Research Advisory Board (MSA United - United States)
Glenda Halliday, PhD
Scientific Research Advisory Board (MSA AU-NZ/Defeat MSA Down Under)
Henry Houlden, MD, PhD
Medical Research Advisory Board (MSA United - United Kingdom)
Jeffrey Kordower, PhD
Scientific Research Advisory Board (Defeat MSA Alliance - United States)
Anthony E. Lang, OC, MD, FRCPC, FAAN, FCAHS
Co-Chair, Medical Research Advisory Board (MSA United - Canada)
Giulia Lazzeri, MD
Medical Research Advisory Board (MSA United - Combattiamo MSA Italia)
Peter A. LeWitt, MD, MMedSc
Medical Research Advisory Board (Defeat MSA Alliance - United States)
Wouter Peelaerts, PhD
Chair, Scientific Research Advisory Board (MSA United - Belgium)
Alexandra Pérez Soriano, MD
Barcelona, Spain (MSA United - Spain)
Michael G. Schlossmacher, MD, DABPN, FRCPC
Scientific Research Advisory Board (MSA United - Canada)
Oybek E. Turgunkhujaev, MD
Medical Research Advisory Board (MSA United - Uzbekistan/Russia)
Gary Zammit, PhD
Scientific Research Advisory Board (Defeat MSA Alliance - USA)
Enrique Urrea-Mendoza, MD
Greenville, South Carolina (MSA United - United States)
Victor Dieriks, PhD
Auckland, New Zealand (MSA United - New Zealand)MULTIPLE SYSTEM ATROPHY NEWS
Third Annual Virtual MSA All-Community Conference
BREAKING NEWS – NEW MSA RESEARCH GRANTS
FOR IMMEDIATE RELEASE USA, CANADA, AUSTRALIA, SPAIN, ITALY & NEW ZEALAND – March 12, 2022 Today, the Board of Directors of Defeat MSA Alliance (USA), Defeat MSA/Vaincre AMS Canada, and Defeat MSA Australia and New Zealand, three of the six partnering members of...
MSA United Global Partnerships
MSA Research Consortium Advisors
HELP DEFEAT MSA!Donate to A Consortium Partner:Defeat MSA Alliance - USADefeat MSA/Vaincre AMS CanadaDefeat MSA Australia and New Zealand, Ltd. (AU-NZ)Combattiamo AMS/MSA ItaliaAsociación Española Síndrome Shy Drager – Atrofia Multisistémica * Promising...
MSA Annual Virtual Conference, 24 September – 2 October
Defeat MSA Alliance Board of Directors and affiliated charities in the MSA United Consortium are pleased to announce the second Annual All-Community MSA Conference to be held 24 September - 2 October, 2021. This year's conference will include several exciting...
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Postal Mail
MSA United International
29924 Jefferson Avenue
Saint Clair Shores, Michigan 48082
USA