MULTIPLE SYSTEM ATROPHY  UNITED

UNITED, WE CAN AND WILL DEFEAT MSA FOREVER!

MANY LIVES, ONE HOPE

  • RESEARCH
  • EDUCATION
  • SUPPORT
  • ADVOCACY

 

OUR MISSION STATEMENT
ABOUT MSA UNITED
CONSORTIUM BROCHURE (PDF FILE)

What is
Multiple System Atrophy?

MSA is a rare, fast and fatal brain disease. MSA impairs the systems that regulate blood pressure, heart rate and the bladder – many of the basic bodily functions that people take for granted every day. People with MSA suffer from dangerously low blood pressure, speech and swallowing difficulties, sleep disturbances, breathing problems, rigidity and tremors. The life expectancy is typically 5 to 10 years. Patients with advanced MSA often become bed-bound, unable to speak and immobile. At present, there is no cure for MSA, no genetic tests to detect it, no therapy to slow it and very few treatments to manage its debilitating effects.

MULTIPLE SYSTEM ATROPHY UNITED INTERNATIONAL

Defeat MSA Alliance (USA)

Defeat MSA Alliance is a US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.

 

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Defeat Multiple System Atrophy – Vaincre L’Atrophie Multisystématisée (Canada)

Defeat MSA Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.

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Defeat MSA Australia & New Zealand (Defeat MSA Down Under)

Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia and New Zealand. It aspires to balance patient support, medical education, public awareness and promising research.

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Combattiamo l’Atrofia Multisistemica (MSA-Italia)

La prima organizzazione Italiana a sostegno dei malati e dei caregivers che convivono con l’Atrofia Multisistemica. Il nostro scopo è fornire supporto ed informazioni a coloro che si trovano ad affrontare questa poco conosciuta patologia neurodegenerativa.

The first Italian organization to support patients and their caregivers Multiple System Atrophy.

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Defeat MSA Awareness Shoe

 The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The MSA Awareness Shoe is a tool for spreading awareness, increasing support for patients and their caregivers and fighting MSA by raising vital research dollars. The Shoe’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

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Atrofia Multisistémica (ASYD)

Atrofia Multisistémica es una asociación que atiende a afectados por AMS y sus familiares- Entre nuestros objetivos principales pretendemos dar visibilidad a la enfermedad, promover la investigación y aportar los recursos disponibles para la mejora de la calidad de vida de estos pacientes.

The Association for Atrofia Multisistémica cares for those affected by Multiple System Atrophy (AMS/MSA) and their families. Our intention is to give visibility, promote research and provide available resources to improve the quality of life for AMS/MSA patients.

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“A seed hidden in the heart of an apple is an orchard invisible.”

~ Kahlil Gibran

MSA UNITED
PATIENT
ADVOCACY COUNCIL

The mission of the MSA Patient Advocacy Council is to facilitate communication between stakeholders in the MSA community, creating a global platform for discussion, consensus building, and a vehicle for sharing experiences related to living with MSA.

Charlene McCabe Allemon

Michigan, USA

Joshua Lee Calvert

New South Wales, Australia

Rev’d Stephen Donald

Gisborne, New Zealand

Grace Dunne

New York, USA

Miguel Ángel del Pino Esteban

Member, Patient Council (Asociacion Shy-Drager - Spain)

Barbara Flanagan

Tennessee, USA

Kelly Murphy

Ontario, Canada

Michael Smith

Texas, USA

Daniel Tenev

Milan, Italy

Marta Behrendt

Marburg, Germany
Veronica Whitelock

Veronica Whitelock

Johannesburg, South Africa

Valerie Garneau

Quebec, Canada

Files and Resources

Information about MSA
Find a Doctor
Find a Support Group
  • in Spain
  • in Italy
  • in USA
  • in Canada
  • in Australia
  • in New Zealand
  • Online Support Groups
About Our Consortium
Volunteer to help
  • English
  • French
  • Spanish
  • Italian

MSA United Consortium Representatives Council

Rosemary Arbuthnot (Northern Ireland)

Sandra Bettenhausen (United States)

Philip Fortier (United States)

Beth Foster (Canada)

Olivia Romano (Australia)

Miguel Ángel del Pino Esteban (Spain)

Sergei Povaliaev (Russia)

Monica Remartini (Italy)

Jacqui Simpson (New Zealand)

GLOBAL SCIENCE AND MEDICAL RESEARCH ADVISORS

Affiliated Charities

AllDefeat MSA Alliance (USA) & Combattiamo MSA (Italy)Defeat MSA/Vaincre AMS (Canada) & ASYD (Spain)Defeat MSA Down Under (AU-NZ)
Dr Gregory Auner

Gregory W. Auner, PhD

Scientific Research Advisory Board (Defeat MSA Alliance - USA)

Pratik D. Bhattacharya, MD, MPH

Scientific and Medical Research Advisory Boards (MSA United - India/United States)

Alessio Di Fonzo, MD PhD

Medical Research, Combattiamo MSA Italia

Ziv Gan-Or, MD, PhD

Scientific Research Advisory Board (MSA United - Israel/Canada)
Edwin George

Edwin B. George II, MD, PhD

Chair, Medical Research Advisory Board (MSA United - United States)

Glenda Halliday, PhD

Scientific Research Advisory Board (MSA AU-NZ/Defeat MSA Down Under)

Henry Houlden, MD, PhD

Medical Research Advisory Board (MSA United - United Kingdom)

Jeffrey Kordower, PhD

Scientific Research Advisory Board (Defeat MSA Alliance - United States)
Dr Anthony Lang

Anthony E. Lang, OC, MD, FRCPC, FAAN, FCAHS

Co-Chair, Medical Research Advisory Board (MSA United - Canada)

Giulia Lazzeri, MD

Medical Research Advisory Board (Combattiamo MSA Italia)

Peter A. LeWitt, MD, MMedSc

Medical Research Advisory Board (Defeat MSA Alliance - United States)

Wouter Peelaerts, PhD

Chair, Scientific Research Advisory Board (MSA United - Belgium)

Alexandra Pérez Soriano, MD

Scientific Research Advisory Board (Asociacion Shy-Drager - Spain)
Michael Schlossmacher

Michael G. Schlossmacher, MD, DABPN, FRCPC

Scientific Research Advisory Board (MSA United - Canada)

Oybek E. Turgunkhujaev, MD

Medical Research Advisory Board (MSA United - Uzbekistan/Russia)

Gary Zammit, PhD

Scientific Research Advisory Board (Defeat MSA Alliance - USA)

Maria Jose Martí, MD, PhD

Medical Research Advisory Board (Asociacion Shy-Drager - Spain)

Enrique Urrea-Mendoza, MD

Greenville, South Carolina
RESEARCH ROADMAP

MULTIPLE SYSTEM ATROPHY NEWS

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by | Jun 25, 2021 |

Preguntas proactivas: se pueden publicar en línea ¿Puedo seguir uniéndome al ensayo?                                                                                        La inscripción para el estudio en fase III cerró en julio de 2020. ¿Cuándo se espera que...

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MSA AWARENESS MONTH ACTIVITIES

MSA AWARENESS MONTH ACTIVITIES

by | Mar 2, 2021 |

 A Few of Activities For MSA Awareness Month... 1) EAT CAKE. GIVE HOPE. DEFEAT MSA. Join Annual Cake 4 A Cure Campaign! Read About an Amazing and Successful Campaign: Cake4aCure.org   Also, the Facebook page for more details: https://www.facebook.com/Cake4aCure 2)...

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MSA United International
29924 Jefferson Avenue
Saint Clair Shores, Michigan  48082
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